COAS
Center for Open Access in Science (COAS)
OPEN JOURNAL FOR EDUCATIONAL RESEARCH (OJER)

ISSN (Online) 2560-5313 * ojer@centerprode.com

OJER Home

2021 - Volume 5 - Number 2


Identifying the Problems Experienced by Parents of Children with Special Needs during the COVID-19 Pandemic

Mehmet Yavuz * mehmetyavuz@trakya.edu.tr * ORCID: 0000-0003-0762-1611
Trakya University, Faculty of Education, Edirne, TURKEY

Burak Bozak * burakbozak@gmail.com * ORCID: 0000-0001-7557-4576
Bolu Abant İzzet Baysal University, Faculty of Education, Bolu, TURKEY

Evgin Cay * evgincay35@gmail.com * ORCID: 0000-0002-1199-3939
Bolu Abant İzzet Baysal University, Faculty of Education, Bolu, TURKEY

Müzeyyen Eldeniz Çetin * meldeniz1@hotmail.com
Bolu Abant İzzet Baysal University, Faculty of Education, Bolu, TURKEY

Open Journal for Educational Research, 2021, 5(2), 383-402 * https://doi.org/10.32591/coas.ojer.0502.18383y
Received: 31 August 2021 ▪ Accepted: 20 December 2021 ▪ Published Online: 30 December 2021

LICENCE: Creative Commons Attribution 4.0 International License.

ARTICLE (Full Text - PDF)


ABSTRACT:
This study aims to determine the problems experienced by parents of children with special needs during the COVID-19 pandemic. The phenomenological patterns technique, which is a qualitative research method, was used in the study. Ten parents with children with special needs who were affected by different types of disabilities were included in the study. The data in the research were collected using interview forms consisting of open-ended questions and a semi-structured interview technique. After the data obtained from the interviews were decoded, they were analyzed with the descriptive analysis technique. At the end of the study, the findings of the problems experienced by parents of children with special needs during the epidemic, the problems they experienced with their children, and the problems and expectations related to the education of their children were discussed in detail within the framework of the literature.

KEY WORDS: COVID-19 Pandemic, individuals with special needs, parents.

CORRESPONDING AUTHOR:
Burak Bozak, Bolu Abant İzzet Baysal University, Faculty of Education, Bolu, TURKEY. E-mail: burakbozak@gmail.com.


REFERENCES:

Aishworiya, R., & Qi Kang, Y. (2020). Including children with developmental disabilities in the equation during this COVID-19 Salgın. Journal of Autism and Developmental Disorders, 20, 1-4. https://doi.org/10.1007/s10803-020-04670-6

Akcay, E., & Basgul, Ş. S. (2020). Salgın ve özel gereksinimi olan/risk altındaki çocuklar. Ercan ES, Yektaş Ç, Tufan AE, Bilaç Ö. (Eds). COVID-19 Salgını ve Çocuk ve Ergen Ruh Sağlığı. 1. Baskı. Ankara: Türkiye Klinikleri, pp. 55-61.

Akkaş Baysal, E., Ocak, G., & Ocak, İ. (2020). COVID-19 salgını sürecinde okul öncesi çocuklarının EBA ve diğer uzaktan eğitim faaliyetlerine ilişkin ebeveyn görüşleri, Uluslararası Sosyal Bilimler Eğitimi Dergisi, 6(2), 185-214. https://doi.org/10.47615/issej.835211

Allen, S. M., Ciambrone, D., & Welch, L. C. (2000). Stage of life course and social support as a mediator of mood state among persons with disability. Journal of Aging and Health, 12(3), 318-341.

Alpar, B. I. (2020). COVID-19 salgın sürecinde kadın ve hane içi emeği. D. Demirbas, V. Bozkurt, & S. Yorgun (Eds.). COVID-19 Pandemı̇sinin Ekonomik, Toplumsal Ve Siyasal Etkileri, içinde (ss. 171-184). İstanbul: İstanbul Üniversitesi Yayınevi. https://doi.org/10.26650/B/SS46.2020.005.11

Altindag Kumas & Sumer (2019). Özel gereksinimli küçük çocuğu olan annelerin öz yetkinlikleri, yilmazlık düzeyleri ve stres düzeyleri arasındaki ilişkilerin belirlenmesi. Kastamonu Eğitim Dergisi, 27(1), 163-173. https://doi.org/10.24106/kefdergi.2445

APA (American Psychiatric Association) (2014). DSM-5 tanı ölçütleri başvuru el kitabı (E. Köroğlu, Çev). Ankara: Hekimler.

Aslan, R. (2020). Tarihten günümüze epidemiler, salgınler ve COVID-19. Ayrıntı Dergisi, 8(85), 35-41.

Basaran, M., & Aksoy, A. B. (2020). Anne-babaların korona-virüs (COVID-19) salgını sürecinde aile yaşantılarına ilişkin görüşleri. Uluslararası Sosyal Araştırmalar Dergisi, 13(71), 668-678.

Bek, H., & Şen, B. (2014). Öğrenme güçlükleri yaşayan çocukların gelişim özellikleri (pp. 67-78). (Editör: S. Sunay Yildirim Doğru). Öğrenme güçlükleri (2. baskı). Ankara: Eğiten Kitap.

Bell, K. L., Boyd, R. N., Tweedy, S. M., Weir, K. A., Stevenson, R. D., & Davies P. S. (2010). A prospective, longitudinal study of growth, nutrition and sedentary behaviour in young children with cerebral palsy. BMC Public Health, 10,179. http://dx.doi.org/10.1186/1471-2458-10-179

Ben-Naim, S., Gill, N., Laslo-Roth, R., & Einav, M. (2019). Parental stress and parental self-efficacy as mediators of the association between children’s ADHD and marital satisfaction. Journal of Attention Disorders, 23(5) 506-516.

Bozkurt, V. (2020). Salgın döneminde çalışma: ekonomik kaygılar, dijitalleşme ve verimlilik. D. Demirbas, V. Bozkurt & S. Yorgun (Eds.). COVID-19 pandemı̇sı̇nı̇n ekonomik, toplumsal ve siyasal etkileri, içinde (pp. 115-136) İstanbul Üniversitesi Yayınevi.

Bradbury-Jones, C., & Isham, L. (2020). The salgınc paradox: The consequences of COVID-19 on domestic violence. Journal of Clinical Nursing, 1-3. http://dx.doi.org/10.1111/jocn.15296

Brooks, S. K., Webster, R. K., Smith, L. E., Woodland, L., Wessely, S., Greenberg, N., & Rubin, G. J. (2020). The psychological impact of quarantine and how to reduce it: Rapid review of the evidence. The Lancet, 395(10227), 912-920.

Cacioppo, M., Bouvier, S., Bailly, R., Houx, L., Lempereur, M., Mensah-Gourmel, J., … Pons, C. (2020). Emerging health challenges for children with physical disabilities and their parents during the COVID-19 salgınc: the ECHO French survey. Annals of Physical and Rehabilitation Medicine. 1429, 1-8,http://dx.doi.org/10.1016/j.rehab.2020.08.001

Can, E. (2020). Coronavirüs (COVID-19) salgını ve pedagojik yansımaları: Türkiye’de açık ve uzaktan eğitim uygulamaları. Açıköğretim Uygulamaları ve Araştırmaları Dergisi, 6(2), 11-53.

Can, F. G. (2015). Özel gereksinimli çocuğu olan ve olmayan ebeveynlerin evlilik uyumu yaşam doyumu ve etkileyen faktörler (Tez Numarası: 396379) (Yüksek lisans tezi). T.C. Atatürk Üniversitesi Sağlık Bilimleri Enstitüsü. Erzurum.

Cavkaytar, A. (2000). Zihinsel özel gereksinimlilerin eğitim amaçları. Anadolu Üniversitesi Eğitim Fakültesi Dergisi, 10(1), 115-121.

Chang Y.-J., Chen S.-F., Huang J.-D. (2011). A Kinect-based system for physical rehabilitation: A pilot study for young adults with motor disabilities. Research in Developmental Disabilities, 32(6), 2566-2570.

Cho, S., & Kahng, S. K. (2015). Predictors of life satisfaction among caregivers of children with developmental disabilities in South Korea. Asian Social Science, 11(2), 154-166. http://dx.doi.org/10.5539/ass.v11n2p154

Cluver, L. MLachman, J., Sherr, L., Wessels, I., Krug, E., Rakotomalala, S …. McDonald, K.. (2020). Parenting in a time of COVID-19. Lancet, 395: e64, http://dx.doi.org/10.1016/S0140-6736(20)30736-4

Damiani, B. V. (1999). Responsibility and adjustment insiblings of children with disabilities: update and review. The Journal of Contemporary Human Services, Families in Society, 1, 34-40.

Duan, L., & Zhu, G. (2020). Psychological interventions for people affected by the COVID-19 epidemic. The Lanset, 7(4), 300-302. https://doi.org/10.1016/S2215-0366(20)30073-0

Ercan, S. E.,, Arman A. R., Emiroglu, İ. N. , Oztop, D. B., & Yalcin, Ö. (2020). Türkiye çocuk ve genç psikayatrisi derneği covid 19 (korona) virüs salgını arasında aile, çocuk ve ergenlere yönelik psikososyal ve ruhsal destek rehberi. https://www.ankara.edu.tr/Covid-19/, accessed on 11 January 2021.

Gau, S. S., Chou, M. C., Chiang, H. L., Lee, J. C., Wong, C. C., Chou, W. J., & Wu, Y.Y. (2012). Parental adjustment, marital relationship, and family function in families of children with Autism. Research in Autism Spectrum Disorders, 6(1) 263-270.

Girli, A. (1995). Normal zekalı kardeşlerin zihinsel özel gereksinimli kardeşe yönelik kabul düzeylerinin belirlenmesi (Tez Numarası: 43944) (Yayımlanmamış yüksek lisans tezi). Dokuz Eylül Üniversitesi Sosyal Bilimler Enstitüsü Eğitim Bilimleri Anabilim Dalı, İzmir.

Goksu, Ö., & Kumcağız, H. (2020). COVID-19 salgınında bireylerde algılanan stres düzeyi ve kaygı düzeyleri. Turkish Studies, 15(4), 463-479. https://dx.doi.org/10.7827/TurkishStudies.44397

Görgü, E. (2005). 3-7 Yaş arası otistik çoçuğa sahip olan annelerin algıladıkları sosyal destek düzeyleri ile depresyon düzeyleri arasındaki ilişki (Tez Numarası: 188722) (Yayınlanmamış Yüksek Lisans Tezi). Marmara Üniversitesi Eğitim Bilimleri Enstitüsü, İstanbul.

Gupta, A., & Goplani, M. (2020). Impact of COVID-19 on educational institutions in India. UGC Care Journal, 31(21), 661-671. https://doi.org/10.13140/RG.2.2.32141.36321

Ham, A. (2020). Social and economic impact of the COVID-19 and policy options in Honduras. https://www.undp.org/content/dam/rblac/Policy%20Papers%20COVID%2019/UNDPRBLAC-CD19-PDS-Number4-EN-Honduras.pdf (30.04.2020).

Harris, S. L., & Glasberg, B. A. (1994). Siblings of children with autism: A guide for families. Woodbine house Bethesda, M. D. https://doi.org/10.3390/ijerph17051729

İnce, Z. İ., & Tüfekci, F. G. (2015). Özel gereksinimli çocuğu olan ebeveynlerde evlilik uyumu ve yaşam doyumunun değerlendirilmesi ve etkileyen faktörlerin belirlenmesi. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi, 4, 102-112.

Jıao, W. Y., Wang, L. N., Liu, J., Feng Fang, S., Jiao, F. Y., Pettoello-Mantovani, M., & Somekh, E. (2020). Behavioral and emotional disorders in children during the COVID-19. Epidemic. J Pediatr: Elsevier Public Health Emergency Collection. (Çevrim içi yayın) http://dx.doi.org/10.1016/j.jpeds.2020.03.013

Kalac, Ö., Telli, G., & Eronal, Y. (2020). COVID-19 mücadelesi kapsamında uzaktan eğitim sürecinde özel gereksinimli öğrencilerin durumu  sorunlar ve çözüm önerileri. Manisa Celal Bayar Üniversitesi Rektörlük Basımevi Müdürlüğü: Manisa.

Kara, H. Z., & Alsancak, F. (2020). Koronavirüs salgınında toplumun yaşlı ve özel gereksinimlilere yönelik düşünceleri üzerine bir araştırma. Pearson Journal Of Socıal Scıences & Humanıtıes, 5(8) 133-143. http://dx.doi.org/10.46872/pj.155

King, G., Law, M., King, S., Rosenbaum, P., Kertoy, M. K., & Young, N. L. (2003). A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Physical and occupational therapy in pediatrics, 23(1), 63-90.

Kluwer, E. (2020). Families in time of Corona. Retrieved on 11 January 2021, from https://nias.knaw.nl/food-for-thought/families-in-times-of-corona/.

Kundu, B., & Bhowmik, D. (2020). Societal impact of novel corona virus (COVID-19 salgın) in India. SocArXiv, 1-14. http://dx.doi.org/10.31235/osf.io/vm5rz

Lamb, M., & Sutton-Smith, B. (2014). Sibling relationships: Their nature and significance across the lifespan. Psychology Press. New York: Taylor & Francis.

Maltais, D. B., Wiart, L., Fowler, E., Verschuren, O., & Damiano, D. L. (2014). Health-related physical fitness for children with cerebral palsy. Journal of Child Neurology, 29(10), 91-100. http://dx.doi.org/10.1177/0883073814533152

Matson, J. L., & Fodstad, J. C. (2009). The treatment of food selectivity and other feeding problems in children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3(2), 455-461. http://dx.doi.org/10.1016/j.rasd.2008.09.005

Mengi, A., & Alpdogan, Y. (2020). COVID-19 salgını sürecinde özel eğitim öğrencilerinin uzaktan eğitim süreçlerine ilişkin öğretmen görüşlerinin incelenmesi, Millî Eğitim, 49(1), 413-437.

Moore-Brown, B. J., & Montgomery, J. K. (2006). Making a difference for America’s children: Speech-language pathologists in public schools. Eau Claire, WI: Thinking Publications.

Ohaeri, J. U. (2003). The burden of caregiving in families with a mental illness: A review of 2002. Current Opinion in Psychiatry, 16(4), 457-466.

Ozturk, M. S., Yilmaz, N., Demir Erbil, D., & Hazer, O. (2020). COVID-19 salgın döneminde hane halkındaki çatışma ve birlik-beraberlik durumunun incelenmesi. Turkish Studies, 15(4), 295-314. https://dx.doi.org/10.7827/TurkishStudies.44424

Sahin, E., Öz, A. O., & Sıngın, R. H. Ö. (2020 Ekim). COVID-19 salgın sürecinin otizm spektrum bozukluğunda motor becerilere etkisi. EJERCongress 2020 Bildiri Özetleri Kitabı, Eskisehir.

Salaun, L., & Berthouze-Aranda, S. (2011). Obesity in school children with intellectual disabilities in France. Journal of Applied Research in Intellectual Disabilities, 24, 333-340.

Sari, H. Y., & Altıparmak, S. (2008). Ebe ve hemşirelerin zihinsel özel gereksinimli çocuklarla ilgili bilgileri. TSK Koruyucu Hekimlik Bülteni, 7(2), 127-132.

Sari, T., & Nayir, F. (2020). Salgın dönemi eğitim: sorunlar ve fırsatlar. Turkish Studies, 15(4), 959-975. https://dx.doi.org/10.7827/TurkishStudies.44335

Shafran, R., Coughtrey, A., & Whittal, M. (2020). Recognising and addressing the impact of COVID-19 on obsessive-compulsive disorder. The Lancet Psychiatry, 7(7), 570-572.

Spahis, S., Vanasse, M., Be’langer, S. A., Ghadirian, P., Grenier, E., & Levy, E. (2008). Lipid profile, fatty acid composition and pro- and anti-oxidant status in pediatric patients with attention-deficit/hyperactivity disorder. Prostaglandins Leukot Essent Fatty Acids, 79, 47-53.

Trute, B., & Hiebert-Murphy, D. (2002). Family adjustment to childhood developmental disability: A measure of parent appraisal of family impacts. Journal Of Pediatric Psychology, 27(3),271-280.

UNESCO (2020a). COVID-19 educational disruption and response, https://en.unesco.org/Covid19/educationresponse, accessed on 7 April 2020.

Wang, G., Zhang, Y., Zhao, J., Zhang, J., & Jiang, F. (2020). Mitigate the effects of home confinement on children during the COVID-19 outbreak. Lancet, 395, 945-7. http://dx.doi.org/10.1016/S0140-6736(20)30547-X

Wang, C., Cheng, Z., Yue, X. G., & McAleer, M. (2020). Risk management of COVID-19 by universities in China. Journal of Risk and Financial Management, 13, 36-42.

Wang, C., Pan, R., Wan, X., Tan, Y., Xu, L., Ho, C. S., & Ho, R. C. (2020). Immediate psychological responses and associated factors during the ınitial stage of the 2019 coronavirus disease (covıd-19) epidemic among the general population in China. Environmental Research and Public Health, 17, 1729.

WHO (2020). Past salgıncs. http://www.euro.who.int/en/health-topics/communicablediseases/influenza/salgınc-influenza/past-salgıncs, accessed on 12 January 2021.

Zhao, Y. (2020). COVID-19 as a catalyst for educational change. Prospects, 1(5). https://doi.org/10.1007/s11125-020-09477-y

© Center for Open Access in Science